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SCDAI NewsLetter(s) Click to view!

September 2020 (1)

June 2020

March 2020

February 2020

News You Can Use! Stay Updated! Join Us!

Covid-19 & Sickle Cell Disease

Health Alert Handouts

Covid-19 Resource Links

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Illinois Statewide Monthly Support Group Virtual Meeting

2020 Virtual

Walk, Jog, or Bike

A-Thon

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Register Your Team or yourself! Pick a day or days and lets gear up to Virtually Walk, Jog, Run, or bike to raise Sickle Cell Awareness!

Click to Sign-Up

Virtual WJBAT

September 16th, 2020- October 14th, 2020

(One month to choose whichever day(s) you want to get up, get out and get active!)

Remember to take pics/videos and share them with us using the hastag #WJBAT2020!)

Sickle Cell Masks!

Stay Safe while Raising Sickle Cell Awareness!

Option 1. Pick Up

$8 Donation (per mask)

(*Pick-up at Office/Please email or call us to schedule)

 

Option 2. Mailed

$10 Donation (per mask)

(Please use our donation link below and be sure to put specify which mask you want and include your complete mailing address in the memo, Thank You!)

2020 Summer Camp

Unfortunately Camp is Cancelled due to the Covid-19 Pandemic!!

Are you between the ages of 7-17? Would you like to experience summer camping with other youth with Sickle Cell Disease?

Are you over the age of 19? Would you like to be a Summer Camp Volunteer?

If yes to one of the above,

Click Here for More Information!

Sickle Cell Advocacy Actions! Updates!

Immediate Call To Action!

(To find your legislators phone #'s click here)

(To download document click here)

 

 

 

 

 

 

 

 

 

 

 

 

 

The President of the United States Signs the Sickle Cell Treatment Act of 2018! 

Advocacy Efforts Create Legislative Victory!

 

On December 18, 2018, S.2465 - The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018  - was signed into law by the President. 

Click here to read more!

 

The bill (S.2465) represents a commitment by the government to continue much-needed research geared towards increasing the understanding of prevalence, distribution, outcomes, and therapies associated with sickle cell disease (SCD). It also reauthorizes SCD prevention and treatment grants awarded by the Health Resources and Service Administration (HRSA), and it authorizes the Centers for Disease Control and Prevention to award SCD surveillance grants to states, academic institutions and non-profit organizations.

This Community NEEDs YOU!

There is a CURE for Sickle Disease Patients who have a match! You could be the cure for an individual living with Sickle Cell Disease!

 

Click below to JOIN the Be The Match donor registry with a simple CHEEK SWAB!

Did you know Transfusions are one of the major treatments for Sickle Cell Patients?

Your Blood Is needed! Please Donate Blood, Host a Blood Drive or come out to one of our Blood Drives!

Other ways you Can Help!

Raising Awareness In The Sickle Cell CommUNITY

This code is only good in Federal campaigns

 

# 79914

Employee giving campaign season is underway and many public sector campaigns, including the Combined Federal Campaign (CFC), have kicked off.

 

You can participate in CFC campaigns throughout the country with your local Community Health Charities Affiliate.  this number no matter where you are located in the world.

Be an advocate in your local community!

  • Participate in health fairs

  • Schedule an education session

  • Be apart of advocacy efforts

  • Increase community financial support

  • Gather a team, register and participate in our Annual WJBAT

  • Collect toys and gift cards for our Annual Toy Drive

  • Did you know there is a Sickle Cell Disease Association of America (SCDAA) located in Baltimore, MD?

  • Did you know there are over 60 member organizations across the United States?

 

Stay up to date with what's going on on a National level for Sickle Cell!

www.sicklecelldisease.org 

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