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Covid-19 & Sickle Cell Disease
Health Alert Handouts
Covid-19 Resource Links
Illinois Statewide Monthly Virtual Support Group Meeting
Thursday 11/19/2020 Recording:
(Did you miss the meeting?)
Sickle Cell Masks!
Stay Safe while Raising Sickle Cell Awareness!
Option 1. Pick Up
$8 Donation (per mask)
(*Pick-up at Office/Please email or call us to schedule)
Option 2. Mailed
$10 Donation (per mask)
(Please use our donation link below and be sure to put specify which mask you want and include your complete mailing address in the memo, Thank You!)
2020 Summer Camp
Unfortunately Camp is Cancelled due to the Covid-19 Pandemic!!
Are you between the ages of 7-17? Would you like to experience summer camping with other youth with Sickle Cell Disease?
Are you over the age of 19? Would you like to be a Summer Camp Volunteer?
If yes to one of the above,
Sickle Cell Advocacy Actions! Updates!
Immediate Call To Action!
(To find your legislators phone #'s click here)
(To download document click here)
The President of the United States Signs the Sickle Cell Treatment Act of 2018!
Advocacy Efforts Create Legislative Victory!
On December 18, 2018, S.2465 - The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018 - was signed into law by the President.
The bill (S.2465) represents a commitment by the government to continue much-needed research geared towards increasing the understanding of prevalence, distribution, outcomes, and therapies associated with sickle cell disease (SCD). It also reauthorizes SCD prevention and treatment grants awarded by the Health Resources and Service Administration (HRSA), and it authorizes the Centers for Disease Control and Prevention to award SCD surveillance grants to states, academic institutions and non-profit organizations.
This Community NEEDs YOU!
There is a CURE for Sickle Disease Patients who have a match! You could be the cure for an individual living with Sickle Cell Disease!
Click below to JOIN the Be The Match donor registry with a simple CHEEK SWAB!
Did you know Transfusions are one of the major treatments for Sickle Cell Patients?
Your Blood Is needed! Please Donate Blood, Host a Blood Drive or come out to one of our Blood Drives!
Other ways you Can Help!
Raising Awareness In The Sickle Cell CommUNITY
This code is only good in Federal campaigns
Employee giving campaign season is underway and many public sector campaigns, including the Combined Federal Campaign (CFC), have kicked off.
You can participate in CFC campaigns throughout the country with your local Community Health Charities Affiliate. this number no matter where you are located in the world.
Be an advocate in your local community!
Participate in health fairs
Schedule an education session
Be apart of advocacy efforts
Increase community financial support
Gather a team, register and participate in our Annual WJBAT
Collect toys and gift cards for our Annual Toy Drive
Did you know there is a Sickle Cell Disease Association of America (SCDAA) located in Baltimore, MD?
Did you know there are over 60 member organizations across the United States?