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Covid-19 & Sickle Cell Disease
Health Alert Handouts
Covid-19 Resource Links
~Program/Event~
Presentations from June 19th Support Group Meeting:
Upcoming 2020 Events Click below!
Walk/Jog/Bike-A-Thon
Details Coming Soon!
Save The Date for a Virtual Walk to take place during Sickle Cell Awareness Month September 2020!
Management of Sickle Cell Disease Conference
Details & Registration Coming Soon!
2020 Summer Camp
Unfortunately Camp is Cancelled due to the Covid-19 Pandemic!!
Are you between the ages of 7-17? Would you like to experience summer camping with other youth with Sickle Cell Disease?
Are you over the age of 19? Would you like to be a Summer Camp Volunteer?
If yes to one of the above,
Click Here for More Information!
Immediate Call To Action!
(To find your legislators phone #'s click here)
(To download document click here)
The President of the United States Signs the Sickle Cell Treatment Act of 2018!
Advocacy Efforts Create Legislative Victory!
On December 18, 2018, S.2465 - The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018 - was signed into law by the President.
The bill (S.2465) represents a commitment by the government to continue much-needed research geared towards increasing the understanding of prevalence, distribution, outcomes, and therapies associated with sickle cell disease (SCD). It also reauthorizes SCD prevention and treatment grants awarded by the Health Resources and Service Administration (HRSA), and it authorizes the Centers for Disease Control and Prevention to award SCD surveillance grants to states, academic institutions and non-profit organizations.
This Community NEEDs YOU!
There is a CURE for Sickle Disease Patients who have a match! You could be the cure for an individual living with Sickle Cell Disease!
Click below to JOIN the Be The Match donor registry with a simple CHEEK SWAB!
Did you know Transfusions are one of the major treatments for Sickle Cell Patients?
Your Blood Is needed! Please Donate Blood, Host a Blood Drive or come out to one of our Blood Drives!
Other ways you Can Help!
Raising Awareness In The Sickle Cell CommUNITY
This code is only good in Federal campaigns
# 79914
Employee giving campaign season is underway and many public sector campaigns, including the Combined Federal Campaign (CFC), have kicked off.
You can participate in CFC campaigns throughout the country with your local Community Health Charities Affiliate. this number no matter where you are located in the world.
Be an advocate in your local community!
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Participate in health fairs
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Schedule an education session
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Be apart of advocacy efforts
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Increase community financial support
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Gather a team, register and participate in our Annual WJBAT
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Collect toys and gift cards for our Annual Toy Drive
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Did you know there is a Sickle Cell Disease Association of America (SCDAA) located in Baltimore, MD?
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Did you know there are over 60 member organizations across the United States?
Stay up to date with what's going on on a National level for Sickle Cell!
www.sicklecelldisease.org
