Thank You for Stopping By! 

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SCDAI's News You Can Use Letter(s)
Click below to view & Stay Informed!


April 2022
March 2022
 

September 2021

April 2021

January 2021
November 2020
September 2020
June 2020
March 2020
February 2020

News You Can Use! Stay Updated! Join Us!

Current Sickle Cell Disease Treatment Options
(Click on each one below to learn more!)

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Hydroxyurea

(Hydrea, HU, Droxia)

Ages 2 & Over

Bristol Myers Squibb

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Endari

(L-glutamine)

Ages 5 & Over

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Oxbryta

(Voxelotor)

Ages 4 & Over

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Adakveo

(Crizanlizumab-tmca)

Ages 16 & Over

Join Our Support Groups

Virtual Male Support Group

Virtual Statewide Support Group

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Join GroupMe
(App on your cell  phone or computer)

  • GroupMe-Caregivers of Individuals with Sickle Cell Disease Only-Click To Join

Bowling to Raise Sickle Cell Awareness 1 Pin At A Time 
Saturday June 11th, 2022

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Walk/Jog/Bike-A-Thon 2022

Registration Opening Soon!

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Thank you! 2021 WJBAT Sponsors

community heatlh charities
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GBT logo
swag savvy
Keepers of the flame
Be The Match logo
Clemons and Assoc
Team DeMarquis
LaRabida
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20th Annual Golfing to Raise Sickle Cell Awareness!

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Thank you 2021 Sponsors

Sickle Cell Masks!

Stay Safe while Raising Sickle Cell Awareness!

Option 1. Pick Up

$8 Donation (per mask)

(*Pick-up at Office/Please email or call us to schedule)

 

Option 2. Mailed

$10 Donation (per mask)

(Please use our donation link below and be sure to put specify which mask you want and include your complete mailing address in the memo, Thank You!)

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July 2022 Summer Camp Will be back In Person!
(Please advise that there are NEW Restrictions in place due to the current Covid-19 Pandemic!)

Are you between the ages of 7-17? Would you like to experience summer camping with other youth with Sickle Cell Disease?

Are you over the age of 19? Would you like to be a Summer Camp Volunteer?

If yes to one of the above,
Click Here for More Information!

This Community NEEDs YOU!

There is a CURE for Sickle Disease Patients who have a match! You could be the cure for an individual living with Sickle Cell Disease!
 
Click below to JOIN the Be The Match donor registry with a simple CHEEK SWAB!

Do you know that Transfusions are one of the major treatments for Sickle Cell Patients? Do you know that blood donations are low and Sickle Cell patients sometimes cannot receive blood?

Your Blood Is needed! Please Donate Blood, Host a Blood Drive or come out to one of our Blood Drives!

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Individuals with Sickle Cell Disease please Click below to connect to
FREE resources and tools!

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Other ways you Can Help!

Raising Awareness In The Sickle Cell CommUNITY

This code is only good in Federal campaigns

 

# 79914

Employee giving campaign season is underway and many public sector campaigns, including the Combined Federal Campaign (CFC), have kicked off.

 

You can participate in CFC campaigns throughout the country with your local Community Health Charities Affiliate.  this number no matter where you are located in the world.

Be an advocate in your local community!

  • Participate in health fairs

  • Schedule an education session

  • Be apart of advocacy efforts

  • Increase community financial support

  • Gather a team, register and participate in our Annual WJBAT

  • Collect toys and gift cards for our Annual Toy Drive

  • Did you know there is a Sickle Cell Disease Association of America (SCDAA) located in Baltimore, MD?

  • Did you know there are over 60 member organizations across the United States?

 

Stay up to date with what's going on on a National level for Sickle Cell!

www.sicklecelldisease.org 

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